In
honor of November being Native American Heritage Month & National Diabetes
Month, we share this story about an initiative which highlights the Unkechaug
Nation members living with diabetes and opening up about the challenges for a
community-based effort focused on education and lifestyle modification and
prevention programs.
Adelphi University Center for Health
Innovation Selected for a PCORI Pipeline to Proposal Award for Capacity and
Partnership Building
Focused on Native American Health and Wellness:
Reservation-Based Diabetes and Obesity Prevention
In April of this year, The
Patient-Centered Outcomes Research Institute (PCORI) announced that the Adelphi
University Center for Health Innovation was approved for funding for the Native
American Health and Wellness: Reservation-Based Diabetes and Obesity Prevention
project.
The Patient-Centered Outcomes
Research Institute (PCORI) accepted only 17 percent of Tier I project proposals
through the community building “Pipeline to Proposal” Awards program, which
enables patients, advocacy groups, clinicians, and others who are not usual
candidates for research funding to forge relationships around topics of mutual
interest and together develop proposals for patient-centered comparative
effectiveness research.
Elizabeth Gross Cohn, Ph.D., RN,
director of the Adelphi University Center for Health Innovation, which strives
to bring together interdisciplinary teams of faculty and students from across
the university to find innovative ways of creating a culture of health,
community-by-community across Long Island, serves as the principal investigator
for the project. Dr. Cohn, a Robert Wood Johnson Nurse Faculty Scholar, is also
an appointed member of the New York State Minority Health and Health Equity
Council, a Fellow of the New York Academy of Medicine and the New York Academy
of Sciences.
“We were honored to have been
selected to receive funding from the Patient-Centered Outcomes Research Institute
for our work with UNITED,” said Cohn, director of the Adelphi University Center
for Health Innovation. “This project exemplifies our mission at the Center for
Health Innovation, to improve the health of communities by focusing on priority
issues identified from the community. Our work harnesses novel partnerships and
collaboration with experts in our region. We look forward to this work and to
programs in the future that promote health and wellness for all of our
residents in Long Island and beyond.” Now, over six months later, Dr. Cohn
remains excited about the partnership. “We are delighted to be in partnership,”
said Cohn, “and we are looking forward to our kick-off event and next
steps. “
The project, a three-way
collaboration between the Unkechaug Nation, Adelphi University Center for
Health Innovation and Winthrop-University Hospital Diabetes and Obesity
Institute, combines the unique medical expertise and patient population to
improve diabetes care on the Poospatuck Reservation in Mastic, NY.
Co-investigator of the project is Harry B. Wallace, the chief of the Unkechaug
Nation. Virginia Peragallo-Dittko, RN, BC-ADM, CDE, FAADE, executive director
of the Diabetes and Obesity Institute at Winthrop-University Hospital in
Mineola, serves as a consultant.
For decades, Winthrop’s Diabetes
Education Center has provided people living with diabetes with the knowledge,
skills and tools needed to successfully manage their condition and avoid
complications. The Diabetes Education Center was the first nationally
accredited outpatient education program in New York State and it continues to
offer comprehensive education and support to adults and children with diabetes
and pre-diabetes.
Native Americans develop diabetes at
a rate of 33%–three times greater than Whites and twice that of African
Americans. People of all races living with diabetes experience are two to four
times greater risk of developing stroke, hypertension, kidney disease, dental
and periodontal disease, and blindness. Recently, the members of the Unkechaug
Nation have become increasingly concerned about the exponentially rising rate
of diabetes on their reservation, as the numbers reflect the national trends.
But a window of opportunity exists when lifestyle modifications can stop or
significantly delay the progression of disease from pre-diabetes to diabetes
type 2. These changes in diet and exercise are best initiated at the
community–level, tailored so that they meet the needs of those who are using
them.
The Unkechaug Nation’s
Initiative to End Diabetes (UNITED) collaborative
proposes to:
(1)
Outline a set of partnership steps
for a community-based effort focused on education and lifestyle modification
(2)
Explore and design infrastructure
for community-engaged research on the reservation
(3)
Develop a governance structure that
would support applications for future funding opportunities
(4)
Formulate metrics for a measurable
outreach plan
(5)
Develop a guide for other
reservations who wish to adapt pre-diabetes and diabetes prevention programs.
To learn more about the Adelphi
University Center for Health Innovation, visit chi.adelphi.edu. For more
information about diabetes care at Winthrop, call 1-866-WINTHROP or visit
www.winthrop.org. About the history of the Unkechaug Nation, go to their Facebook Page. For additional information about PCORI’s funding awards,
visit pcori.org/content/pipeline-proposal-awards-initiative.
About Adelphi University Center for
Health Innovation
Adelphi University’s Center for Health Innovation (CHI) is the primary resource in our region for innovative,
multidisciplinary, evidence-based responses to improving healthcare, healthcare
systems, and public health. It brings together many from professional and
academic backgrounds to create and foster community-focused, interdisciplinary
academic programming, healthcare research, community partnerships, and
leadership—all with the goal of meeting current and emergent healthcare needs.
About Winthrop-University Hospital
Winthrop is a 591-bed teaching
hospital located on Long Island in Mineola, NY. A major regional healthcare
resource, the Hospital offers a full complement of inpatient and outpatient
services delivered by an outstanding medical staff using the most sophisticated
medical technology available. The Hospital recently opened a state-of-the-art
95,000 square-foot Research & Academic Center that includes core
laboratories, a clinical trial center and classrooms for medical students. In
addition to research on diabetes, obesity and the cardiometabolic complications
that arise from those conditions, Winthrop’s new Research & Academic Center
will focus on other pressing national and local health issues, including
reducing premature births and treating conditions related to aging, such as Alzheimer’s
disease and arthritis.